Tomorrow Would Never Come 📆
As I stood atop a high rise in October 2019, my thoughts weren’t about what life would be like in March 2024, because it would never come.
For the past 6 months, Crohn’s Disease had turned my life into a twisted version of Groundhog’s Day.
Bedridden, only able to eat broth and white rice, otherwise I’d be writhing in pain as it ran through my shredded intestines, I lost half my body weight and was too sick and malnourished to do anything but drag my sack of bones to the bathroom to poop and vomit blood, nearly passing out from the effort.
I’d spend the rest of the day recovering in bed, only to wake up the next day to do it all over again.
I was done. Wrung out.
—
In April 2019, a doctor shoved a pamphlet into my partner’s hand and said this drug would allow me to live “somewhat normally” as long as I took it every 8 weeks for the rest of my life.
Looking over the potential side-effects, it felt like choosing the guillotine or firing squad:
- cancer
- liver damage
- heart failure
- multiple sclerosis (MS)
- lupus-like syndrome
- heart attack or stroke
Asked about alternatives, he at me pointed and yelled:
He will die soon unless he starts treatment!
Stunned, we left the doctor’s office, resolving to find alternatives that were less life-altering.
Over the next 6 months, I tried everything. Feeling okay one day, then spending the next day pooping and vomiting blood - begging for the sweet release of death.
As I laid in bed, too weak to move, I knew I was dying.
—
Looking over the handrail to the sidewalk below, I debated the 3 paths forward:
Continue in this tortured way and, per the doctor, “die soon.”
Go on the life-long drugs and die of the side-effects, or at least wish I had.
End it all now and save everyone and myself the hassle.
With one defiant leap, I’d have the last laugh over my demented master for however long it took to travel 20 stories down.
I took a deep breath, squeezed the chest-high rail tightly, clenched my stomach and the pain in my lower right side took my breath away and I fell to the ground in agony.
Laying on the roof, trying to catch my breath, I thought: I’ll never feel this pain ever again.
I tried to get up and try again, but couldn’t. It felt like the roof was pulling me down.
So weak and emaciated, the disease had robbed me of the ability to even kill myself. I sobbed.
I laid there, staring up at the sky and thought about what would be happening right now, had I jumped:
Many people would have seen or heard me hit the sidewalk and be forever scarred.
My partner would get a call at work and race home to relive the horror of suicide once more. Like their father’s, mine would open the wound wider and ensure it never healed.
Friends and my family would always wonder what they could have done to help.
My sidewalk splash would have left a wake of pain and horror that wouldn’t kill the disease, but spread its wickedness further.
A mental clarity sprang forth. The sense of autonomy I thought was gone came roaring back.
I’d starve this disease of the one thing it thrived on: attention. Instead of fighting its crippling pain, depression, anxiety, arthritis, unfulfilled dreams and whatever else it threw at me, I’d take it all and forever turn the other cheek.
I also resolved to go on the meds and live my life to the fullest, in whatever way possible, for however long I had left.
My weakness became strength.
Crohns’ strength, an Achilles heel.
—
After my strength returned, I went back down to my bedroom and my partner came home soon after and gave me the daily bowl of broth and rice.
Nothing we've tried has worked, so I called a top specialist today and they understood what happened with the other doctor and insisted we meet tomorrow to go over the latest research and treatments. I think we should do it.
I told them I was just thinking the same thing and we both smiled - something we hadn’t done for 6 months.
I laid in bed that night and thought about what “living life to the fullest” meant:
Stop chasing worthless things like money, accolades and material goods. I’d wasted my whole adult life in their pursuit and I wouldn’t make that mistake this second time around.
Slow life down and savor it. I would do things that made my heart sing as much as possible, like spending more time with friends and family. Laugh, play and take the long way around.
Spend time focused on my Zen practice. Having been a casual follower of the philosophy for most of my life, I always said I'd devote time to it “later." Well, I was now in that later time and if the ancient masters were right, I’d experience life on a completely different level.
Five years on now, I’m taking the life-long drugs and the original description of living “somewhat normally” was dead on. Without a cure, I’ll never be back to “normal,” but I’ll take the 75% normal I have now.
I’ve also managed to live by the 3 ideals and experienced peaks and valleys of existence I never knew existed.